Hi, and thanks for the quick reply.
My husband usually is the first to notice the smell. It is an outward odor.
When the relapse is done, the smell goes away. Funny in a weird kind of way.
It's odd also, that when I have a flare and my scalp developes the odor, my head always seems warm through out the process. ???
I have tried to figure it out. I just don't know. I have googled every grouping of words to find out if this happens to other people with MS and if it is indeed a chemical reaction. I have even called Biogen and the MS Society and it appears I am the only one to have this experience.
Just for the record, my MRI's show activity when there is an odor. So I am confident that there is a relationship between the smell and a relapse.
I will keep on searching and asking. I really can't believe I could be the only one with this issue.
Thanx Snoopy,
Sheila

Wow, dx since 86 and no meds. That is wonderful. Still doing well 20 some years later?