Thank you to everyone for their responses. Im sorry its taken me a little while to respond properly but in the last few days Ive had to battle sciatica (thankfully resolved) and a stomach bug that has left me quite weak.

My ptosis for the first time in 3 years seems to be happening less, but a new symptom has appeared in its place. Its not entirely new I had it in June 2008 but this is the first time its happened since then. I have extremely weak legs. Those of you who have gotten to know me, know that I dont do a lot of walking anyway, using a wheel chair outside the house.

Today I was stood in the kitchen waiting for the kettle to boil and all of a sudden my legs started to shake violently and I started to sink. Like my thigh muscles couldn't keep me upright anymore. I made it to the sofa and took two mestinon as I was by myself. Hubs was visiting family an hour away. For around 45 mins I couldn't stand. Im now back on my feet but it was very scary. After any walking now my legs are shaking with fatigue. The mestinon has helped, but Im extremely limited in what I can actually do. What fun!

Lets wait and see what the rest of the day brings! Oh the joy of (undiagnosed and untreated) MG!

Love
Rach