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Aw3sk3r · 10-22-2009, 09:16 AM

Quote:

Originally Posted by erinhermes

Just wanted to say hello and Welcome to the BEST SITE on the net for MG!

Your symptoms do sound like MG - at least as far as I am concerned! I am still a relative "newbie" to MG - only being a year and half into it......hate this darn disease, but it CAN be controlled and life long remission is possible!

I am very curious about what you said about the 'roids....how do they make you feel? I love them, but I am the exception to the rule in that respect! LOL!

You do not have to put on a happy face when you are upset or scared! THat is what WE are here for! Come here and vent all you want! We do know what you are going through......

When you are tired, rest. It is just that simple. When you want to cry, cry. MG is a very scary and LONELY disease b/c we (for the most part) LOOK OK, so people tend to think we are being lazy - I have learned the hard way not to push it - just not worth it for me!

Again, hello and welcome! We are here for YOU!

Erin

Hi Erin,

I am glad to hear that steroids work for you, as for me I feel as if I am jumping out of my skin, I toss and turn all night due to the sweats and jitter. I jump at every little sound now, and oh boy my stomach! (not to mention how the mestinon messes with my stomach). I hope to start the stronger stuff soon and taper off the roids. Thanks again for the welcome! This is a pretty cool community

Quote:

Originally Posted by DesertFlower

"the secrecy of trying to appear normal"

What a great way to say it! This is one of the things that is making me feel crazy. I want to shout out to everyone that I have MG and I don't care what they think. I am tired of explaining or even worse feeling like hiding the fact that something is wrong with me.

Thank you

I feel your pain. I still haven't told my family yet

let alone people at work/friends.