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Originally Posted by Kbanister
Hi all.... cool site. Glad I found it.
Here's the deal with me, hopefully someone can relate because, in all honestly, I don't want to be alone in this hell that has become my life. I itch from head to toe. It gets really bad in the afternoon. I've been to four doctors. The one today gave me head lice treatment.  She didn't even look at my head, and I DO NOT have lice for crying out loud. The other two docs did cbc and blood panels and say I'm B12 deficient, which I'm learning is related to nerves.
The whole thing started a few months ago, when I woke up at 1 am with itching so intense on my feet it was straight painful. Then it went away and then a few months later (about six weeks ago) came back on my arms and since then spread to my entire body. The itching usually starts around noon. It's so hard to finish the work day cause all I want to do is go home and pass out on antihystiminees. My quality of life is shot and I'm basically ready to take a can of gas, pour it all over me, and light a match. For reals, this is such hell. The itch is so bad. I feel like I'm getting poked with little sewing needles, all over my body.
Does this ring any bells with anybody? Please dear god, tell me someone out there has this and has a solution for me, otherwise I am going to do the unthinkable, because I cannot live my life this way.
Please help. |
Hi kbanister,
Welcome to neurotalk. I am so glad you found us too. There are so many kind, informative friends here that are truly 'there' for each other. Please hand on, you need help immediately.I have RSD full body and internally.14 years. For the last 5 I've had a wonderful Dr. I remember him telling me that he has a patient that has continual itching. There is a website from a retired long term RSD Dr. It is rsdrx.com Dr. Hooshmand still has the website up. Under puzzles list there are 146 questions and answers. Puzzle #126 is YOUR question. I would copy this information and take it to your Dr. Do you have an experienced RSD Dr.? You can go to the national site RSDSA and put in your zip code and you receive name and phone number of a RSD support group. It would help if you told us where, state you live? Cleveland Clinic is an excellent hospital for RSD I'll give my Dr. puzzle 126 and see what he says. He is a neurologist, psychiatrist and pharmacologist. He just built two clinic and they both have HBOT in them. Hyperbaric Oxygen Chambers help with circulation, which in turn should help with your itching. I believe most insurance co. don't cover it-not sure. I'm going to go thru HBOT treatment.-saving up for it now.
There are compounding pharmacies now that will mix up a formula a Dr. gives them. Have you been diagnosed with RSD? You need a diagnosis!!!!!!
Don't give up-there are good hospitals and Drs. Please tells us what state you live in. You can call RSDSA and talk to the president Jim Broatch He is real nice and I attended the seminar here in Scottsdale, AZ this spring. We had several Drs. and a scientist.
Try the Epsom Salt Bathes, they are soothing. I flew 3 states away to a orthopedic sports injury group and was diagnosed in 1 minute. I had been misdiagnosed. The Oregon Dr. did some neuclear med tests to confirm and started me on treatment next day. I'm going to give you my phone number on private message. Hang in there, loretta