Quote:
Originally Posted by WolfLarsen
After much difficulty I succeeded in contacting my pain managment doctor about my new symptoms, which I've mentioned before on this forum :
Burning sensations and chills (at times pretty strong) in the legs, with some moderate reddishness; burning sensations in the face, throat and chest, originally set off by a mildly peppery meal but continuing for the past week.
I was concerned that my RSD is spreading. I give the info to his nurse, and she calls back and says he doesn't think its RSD spread and I should see a psychiatrist to (she didn't explain why very well I'm afraid and acted very harried and busy).
So....can you have RSD-like burning sensations beyond the original site and it ISN"T actually RSD spreading? Or is this guy just dismissing me as a hypochondriac? This would make him the third doctor this year to make that assertion- apparently I must come across as nuts to doctors. The first two turned out to be wrong (the symptoms were actually early RSD)...I'm really getting tired of this...
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Hi Wolf,
I'm sorry for your situation. There is a lot of compassion and educated friends here that are willing and want to 'be there' for you. I am living proof of spread-generalized or full body an one Dr. phrased. I have a good neurologist,pharmacologist, psychiatrist 3 in 1 Doc. RSD is such a devasting disorder, counseling is a plus. Being on the right meds for YOU is imperative.
Everyone is different and reacts differently so find a good Doc, get a correct diagnosis. For me physical therapy and desensitization were critical. Massage therapy and swimming were a huge part in keeping me mobile. I do have one hand that is partially paralyzed. Didn't get treatment soon enough due to wrong diagnosis. But I'm grateful the fingers are only partially paralyzed.
I got RSD following surgery-Doc was scared and shipped me off. The early therapy saved my range of motion. I had two remissions of about a year each due to having intensive treatment.
There is a site that I learned a lot on rsdrx.com by Dr. Hooshmand a RSD specialist from Florida. He is retired, but still can learn a lot on his site. Go under the Puzzles List-there are 146 questions with his answers about RSD.
The RSDSA site has a place for your zip code and you see a name and phone number to contact if you want the closest RSD support group. They are very helpful-can learn who in your area has good reputation for RSD treatment.
Please read as much as you can-will learn a lot of coping tools from others and stay connected with others. Take care, loretta