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Old 10-24-2009, 12:59 AM
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DiMarie DiMarie is offline
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Join Date: Aug 2006
Posts: 2,871
15 yr Member
DiMarie DiMarie is offline
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DiMarie's Avatar
 
Join Date: Aug 2006
Posts: 2,871
15 yr Member
Default Hemochromatosis

Well, the problem with the heritary blood disorder has a name, Hemochromatosis. The first signs were likely the extreme chronic fatigue; (when that happened, a thryroid test put me on synthriod). But, that was a sign for this disorder that was not tested. It does not show on regular blood work. One of the other signs was my joint pain, which blaming arthritis but that is an additional sign.

The issue is too much iron in the body and enlarges the organs and can cause enlarged heart, liver. The treatment is getting rid of the iron. Taking about a pint of blood a week until the plasma levels show a save level in the blood.

I will learn more Monday or Tuesday and what the treatment, and damage potential. Organ damage is not reversable, but when the disorder is caught then it will stop destrying the organs.I can't understand why this was not thought of for the last 10 years and tested?

Even though I exhibit so many symptoms and two sisters are diagx I am still crossing my fingers that this is not all related,
I just do not need another issue on my plate....

I will keep you posted, say a prayer
Di
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Pocono area, PA

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DiMarie is offline  
"Thanks for this!" says:
bizi (10-24-2009), waves (10-24-2009)