Thread: Tysabri Information and Check In part 2
View Single Post
Old 10-24-2009, 10:16 AM
komokazi komokazi is offline
Member
  
Join Date: Dec 2008
Posts: 192
15 yr Member
komokazi komokazi is offline
Member
 
Join Date: Dec 2008
Posts: 192
15 yr Member
Default
Quote:
Originally Posted by komokazi View Post
Suggest we all contact MS Active Source on Monday and state that we will take no more infusions of Tysabri (Threat of stopping is probably enough) until they provide us with more info on the PML cases.
MS Active Source in the US is 1-800-456-2255. Let’s hit them with some serious patient driven pressure.

A jump in PML cases is concerning, but also remember that Biogen/Elan are testing various assays to diagnose PML earlier and risk stratify patients. It’s possible that these PML cases were identified (in this large clump) as a result of testing patients (those in Trials most likely) with these assays possibly before clinical symptoms.

Chris
komokazi is offline  
"Thanks for this!" says:
Riverwild (10-25-2009), SallyC (10-24-2009)