Hey sweetie! THanks so much for your kind words! I DID have all over pain until I started on the Neurotin (sp?) - it had spread to my hands and arms - just everywhere. It was a deep, burning, to the bone pain that woke me up crying. Now that I am on the Neurotin, it has relieved
that pain, but my back pain has just gotten worse and worse. It has gotten to the point that walking a few feet causes tears.
I have tried stretching, yoga, massage, everything under the sun and it will not go away. At this point the only thing that numbs it for a brief period is pain meds - norco to be exact.
This is no way to live. I had Dr. I give me another nerve test but he found only minor problems - the other guy (a specialist) found tons of problems, but I need another opinion.
It could be OB/GYN related. I don't know. What I do know is that this cannot continue.
I can't take it!
I think it is the unknown that scares me....you know?
I need to be able to get around on the days that I feel well but I just can't. I don't know what I would do if I didn't have pain meds, but have to find the SOURCE of the pain in order to relieve it.
I have tried the Lidocaine patch, but it really messes with my breathing.
My back brace gives me a few minutes of relief..but only a few.
This is really scaring me.
I also factor in my enormous weight gain..my body simply wasn't meant to carry around this much fat. I am now 170 lbs. My normal weight is around 110-125, however I can;t lose the weight unless I am mobile - something I am NOT now.
Sorry for going on and on......
At this point I am willing to take ANY test given to me - anything to figure this out.
Erin
Quote:
Originally Posted by AnnieB3
Erin, I am so sorry you are in such pain. It is boggling my mind. There has to be something they can do for you. Have you discussed this with an internist? What about a nerve biopsy? I know, invasive and painful.
It's so odd. Is the pain all over the place? Like how the flu or a high fever feels? If you press on your muscles, do they hurt? I have to wonder what the mechanism is if Fentanyl isn't even working. Has anyone tried Lidocaine patches to test to see if it is nerve-related? It's not a 100% test but may give your neuro a clue. You can't overuse them with MG, it would be dangerous. But maybe a "test" on one area to see. Ask your neuro about that.
Someone should be able to figure this out for you. Pain needs to be taken care of. It is EXHAUSTING. I know people who live with chronic pain and they are amazing, in my view. It's so very hard.
I wish I could do more. I wondered why you were a bit quiet lately. Does anything help? Again, I'm very sorry you're hurting.
Annie
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