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Old 10-25-2009, 04:45 AM
Rooberri Rooberri is offline
Junior Member
 
Join Date: Oct 2009
Posts: 11
15 yr Member
Rooberri Rooberri is offline
Junior Member
 
Join Date: Oct 2009
Posts: 11
15 yr Member
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Thanks again every !

Brokenwing - thank you, thank you, thank you!

Just to let you know my "baby" is 19. This conditioned has ruined all of her high school years. It's so sad. She is so angry, so hurt- I realy think that the emotional side of this is preventing her from moving forward on the healing part.

She was misdiagnoised with Trigeminal Neuralgia, Occipital Neuralgia and Geneculate Neuralgia. I flew her to Pittsburgh to Dr. Jannetta, the man who invented the MVD surgery. It was just her and myself and he put her on the operating table the next day. We had two neurlogists tell us "no way she had TN". I think the misdiagnoises was "our" fault....we wanted to lable it...fix it....before that she was diagnoised with Pseudotumor cerebri.....three spinal tabs and a blood patch on the first day of her junior year. There is so much crap in between all that too...wisdom teeth removed....stellate ganglion nerve blocks, occipital nerve blocks. Lyrica, nurotin, cymbalta ( which was a nightmare ).

I ordered the tape yesterday! Thank you for the links. I found a "youtube" flick on applying the tape to her neck and shoulders.

She has deep ear pain, face pain, teeth pain, back of neck pain, scalp pain, shoulder pain.

I finally took her to a neurosurgeon at Emory University in Atlanta and he was talking some crazy stuff...life changing, forever disable stuff...it scared me...but he did say something very profound and set me on the right track: " Because she had the MVD and it didn't work means that the compression was not the cause of her pain"... BINGO!!! So we went backwards from the begining when she did get some relief and that was PT, the chiro, and a good diet. I then took her to a physiatrist and he was straight up with us: she has cervial myofascial pain.

I bought the Self Treatment Trigger Point book and we have been moving forward ever since ! Thank God ! I prayed so hard everyday for something to change and it did !

Sorry so long -

Sheri
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(Broken Wings) (10-25-2009), Hockey (10-25-2009)