I am wondering if Demarco is on an insulin pump? Just a thought, that it may control his blood sugar the best. Also, on the hot tub, he may have autonomic neuropathy, which is a type of small fiber neuropathy. He won't regulate his temperature very well if this is an issue. There are some interventions for autonomic disorders but you probably need to get to an autonomic disorders center at some university.

No child should have to cope with this. Your son is in my thoughts and prayers.