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Old 10-25-2009, 02:08 PM
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cherry33778 cherry33778 is offline
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Join Date: Jun 2009
Location: Tampa Bay Area, FL
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cherry33778 cherry33778 is offline
Junior Member
cherry33778's Avatar
 
Join Date: Jun 2009
Location: Tampa Bay Area, FL
Posts: 45
10 yr Member
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Quote:
Originally Posted by erinhermes View Post
Hello and welcome!

I am so sorry to hear you are having problems breathing - I've only had a few problems in that area and it was truly terrifying!

MG is called the "snowflake disease" b/c it effects all of us in different ways...though being on oxygen 24/7 must be a real pain in the butt!

Do you have anyone to help you out? Do you wear a bracelet in case of an emergency?

I hope this post finds you happy and strong!

Erin



Hi Erin!

Thanks for the concern. I do wear a medic alert bracelet. Since I am so self sufficient (or stubborn ), I rather not have anybody help me out. I just do things that need to be done first and do the rest when I feel up to it. I have learned the hard way not to push myself to do something that can be done tomorrow

I plan on going to the doctors tomorrow, but it is a pain since the county pays for my care and they make it so hard to see a specialist. I will update on how well it goes.

Thank you to everyone for your advice.

Stephanie
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