Quote:
Originally Posted by jana
Stephanie, how do you sit or lay down? When I am having difficulty breathing (I am a mostly Bulbar MGer who is also asthmatic), I breathe easier when I lay on my left side -- I also tend to sit angled this way in my recliner when I am in exacerbation. Sometimes, I even lean FORWARD (in a sitting position) to catch my breath. Laying on your back makes it VERY difficult for your lungs to work (in an MG body) -- you are pushing AGAINST gravity.
I tend to have the chest pains when I am in exacerbation -- I've had ekgs and worn a Holter monitor -- all came back "normal". If all else checks out (DO get this checked out completely!!!), you may learn that this is just part of the "MG package" -- especially during an exacerbation or time of stress. You DO sound stressed right now -- WITH good reason.
Take care!!
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Hi Jana!
I usually lay on my left side. Sometimes I try sleeping on my stomach, which helps my breathing, but worsens my chest pains. Usually this time of year I even have a hard time wearing a brassiere while lying down, because of the pains.
I have had an ekg, ecg, and an TEE but I do not recall having a holster monitor. With no signs heart problems, not even blood pressure elevation, they didn't want to put me through more testing especially after 2 heart catherizations.
I am not particularly stressed out in my life right now, but for some reason every year around this time my MG does get worse.
Thank you for the suggests though!