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Member
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Join Date: Dec 2008
Location: Minnesota
Posts: 222
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Member
Join Date: Dec 2008
Location: Minnesota
Posts: 222
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What is up with that?
I just had my first attack of Optic Neuritis that started on Oct 9th.....I didn't actually know that it was ON causing my "double vision" until it had gotten to a point in which I didn't feel safe to drive. (still getting used to the whole MS thing) I called my neuro on 10/14 and he had me come right in to see him. He prescribed me 1,000 mg of Methylprednisolon for three days. This is also my first time taking steroids.
So I didn't sleep for three full days, the ON did improve but has not totally gone away. It has been a full week since I was done with the steroids, but I am still having several ON 'episodes' daily. The numbness in my feet has gotten worse as well as I am having more tingling in both of my hands, and of all things......I feel like I sat down on a "wet" bench! (my pants are dry, really!) So what is up with that? I was expecting the numbness and "wet" sensation to clear up with the steroids, but it has not. I have also had a constant, dull headache that will not go away and I am light sensitive when I am really tired.
Can someone tell me if this is something I should expect? How long should I give the steroids to do its work? Could I have just moved right into another "flair" after the ON? Is this the same "flair"? Would you call your neuro, or would you wait longer?
Secretly, my fear is that the one time I decide to not check to see if my pants are wet.....that they really will be!
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Amy
DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE
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July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for .
10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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