Member
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Join Date: Jun 2009
Location: Texas
Posts: 748
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Member
Join Date: Jun 2009
Location: Texas
Posts: 748
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HI Kendra!
Sorry to hear what pulmy said. I was a 30 year smoker (have now been quit for 6 years! not easy, but doable)
When my neuro diagnosed me, I was asked if I smoke or if I had ever smoked. Then they immediately wanted to rule LEMS in or out - saying it was important to know before using steroids. I was sent for Cat scan and tons of blood tests and NCV and SFEMG and pulmonary tests. I was also advised that LEMS is quite rare - - more rare than MG!
But in smokers, sometimes LEMS can masquerade as MG. Anyway, my tests ruled out LEMS - leaving me with the dx of sero-neg MG.
Get your neuro on board with your latest info from pulmonary doc. Go over treatment plan. Then get neuro's input on how to go about quitting and whether or not to use a chemical modifier (Chantix, Welbutrin, etc.)
Yes, this can be scary - but you are your best advocate. And you are more than capable of taking an active roll in your treatment plan. Let us know how it goes with neuro.
Sue
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