I just got off the phone with a Biogen support rep and told them about my concerns. I told her that I'm thinking of stopping taking Tysabri since the reports about PML aren't being made public anymore. She got nervous and started to read from a report stating the the company's new policy about regarding the reporting (or lack of) new PML cases.

I told her I was calling my doctor to ask him more about this. That really isn't fair that they should have to handle this though. My doctor's office isn't making any money off of doing the infusions. They don't charge much for the infusions and it costs them more than they make from all that's involved. Why should they have to do Biogen's dirty work?