Hey Awesker,

I've come across those studies too, and they made me worry about ALS as well...I have bulbar MG, and my antibody levels are 2.88, which is kinda low, but I had a thymoma too...But yours are 54 which is really, really high...In ALS, and other neurological diseases where the test can sometimes be 'falsly' positive, I've never seen an antibody level any higher than 1.00 (in the studies I came across) unless the person also has MG, which is unusual...Believe me, I'm pretty sure that you have MG, but I'm just a lay person...Your symptoms are similar to mine...My symptoms have progressed too, and mine is sorta refractory to treatment...But when I have a plasma exchange, the symptoms get 80% better...

Maybe you can ask your doc. for a plasma exchange if your symptoms are getting that bad...This will also put your mind at ease that you have the right diagnosis...

Take care!