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Member
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Join Date: Sep 2006
Posts: 161
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Member
Join Date: Sep 2006
Posts: 161
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NARCOMS Gene Research :)
A few months back I was asked if I were interested in being in this study. They are testing 10,000 MS patients blood for gene study research. It does not matter the type, level of disability; the only requirement is you have a definite MS diagnosis.
I was recently contacted and asked if I were still interested in the study. They are sending me the kit and postage paid return box. This will cost me nothing or cost my insurance anything. I can go right here in town to have my blood drawn.
I will not be told my results but instead the groups results. I was also told when they called 50 to 100 genes are involved where MS is concerned.
I get my blood work done tomorrow (Tuesday ) morning. Already called Fed Express for a Priority Overnight pickup tomorrow afternoon. Needed to explain there was blood in the package and it's being mailed in accordance with the law.
Aside from my 2 neuro's at Pittsburgh's MS Clinic and also releasing my neuro's records from the doctor I saw in Baltimore at Johns Hopkins.
Too, released are my Outpatient Clinic Records, Progress Notes, Consultations, History & Physical Exams, Medical information related to my illness, Radiology Reports, Radiology Images, Diagnostic Imaging Reports, Laboratory Reports and Discharge Summaries.
I hope Dr. Hauser is able to get to the bottom of this MS puzzle.
This is through the University of CA, San Fransisco
Multiple Sclerosis Susceptibility Project
Sponsor/Funding: NIH/NMSS/Nancy Davis Foundation
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