Junior Member
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Join Date: Oct 2009
Posts: 25
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Junior Member
Join Date: Oct 2009
Posts: 25
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Thanks for the reply....
I haven't taken any of that...so far only amitriptyline, prednisone for 6 days, and more recently lyrica. And, at times, this gel containing ketoprofen and small ammounts of other meds.
What appears to have set it off in my case was saoking my foot in coldish (55-60F) water. I'd done this repeatedly in the past when my foot was hot and burning and the veins were all engorged, and it always worked. The foot would be kinda stiff afterwards but running it under a warm faucet always took care of that. This time, probably because my RSD was becoming more virulent, my foot went completely stiff and stayed that way. The warm faucet helped a very little but then I overdid it and caused part of my foot to swell up and get very red and inflamed and painful.
Anyway, I started feeling some spread into my lower legs right as I was doing the cold soak. Probably the intense stimulus of cold sensation excited the defective nerves so much that it made it spread.
This is where the relative lack of pain in my RSD probably nailed me. If I were like most RSD victims, I could never have tolerated doing something like that to my foot. Also its probably tricked me into thinking I have a mild case, when the other effects (stiffness, vasodilation/vasoconstriction) have probably been pretty bad for some time by now.
Alnother theory...bad medication...you see, my last jar of the ketoprofen gel had been stored in too much heat and the gel had separated from the meds. The pharmacist had told me it was fine, just stir it all back together, but....
My first instance of spread (to my other foot) was a month ago, and in retrospect I had been using that gel a lot at the time. I also started feeling fleeting odd sensations in the rest of my body at that time. And more recently, the full body symptoms didn't really take off until I used the gel on the new burn/swelling...it had a really weird effect, got very inflamed and swelled up really fast and I got a weird intense electric tingling that made the toe jerk back and forth. Next morning, I had the symptoms all up both legs and also upper body.
Anyway, so its been a real comedy of errors on my part here....
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