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Old 10-27-2009, 03:01 AM
Mark in Idaho Mark in Idaho is offline
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Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
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Sorry to hear of your daughter's struggles.

This is a tough situation, especially at 15 years old. Been there, done that, while living in Naugatuck.

What part of CT do you live in? Maybe we can find a good resource for you.
I was fortunate to find a good neurologist in Waterbury but that was decades ago.

Sounds like you need a neuro with experience with trauma induced epilepsy. I was put on anti-seizure meds at 16. This age is tough for concussion because the brain is working overtime as it matures and the body goes through many other maturing changes.

Has she requested help with school work? Find the CT agency that advocates for the disabled. She is currently 'disabled' by medical standards. The Advocacy agency should have a PATBI case worker. (Protection and Advocacy for individuals with Traumatic Brain Injury)

Here is a link that might get you started.

http://www.ct.gov/opapd/cwp/view.asp?a=1742&q=447008

http://www.drcfc.org/gbda.htm
or
http://www.ct-dac.org/

Also check with the state BIA group at http://www.biact.org/



She will need an IEP, Individual Education Program until she has recovered to be mainstreamed. She will have access to PSAT, SAT, and ACT tests without a time limit. These organizations should be able to direct you.

Until then, help her relax. Stress is the worst thing for a concussion. You might consider getting her hormones tested. Thyroid, DHEA and all of the sex hormones can get screwed up. She may have a B-12 and folate deficiency too. Common with PCS. These can all be tested with a few vials of blood.

Keep her away from caffeine, artificial sweeteners, MSG, high sugar content foods, etc. Her brain needs protein and essential fatty acids. Get her sunglasses and the yellow foam ear plugs to wear when she tries to go out.

I could not survive without my sunglasses, wide brimmed hat, and yellow foam ear plugs. Noise and light will over do me if I am not careful

Down load Dr Glen Johnson's TBI Survival guide at www.tbiguide.com

It is the best resource. Have the family read it. This will be your life while she recovers.

A good part of her recover may be learning skills for how to deal with her struggles. I have many "work-arounds" that enable me to get things done.

I have been living with PCS for over 40 years. Between recovery and work-arounds, we can have a full life.

My best to you and your daughter.
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Mark in Idaho

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