No, my sister hasn't had ANY lupus tests. So far, I can't convince her OR any of her doctors.

She sees a migraine specialist -- at the same clinic where I see my MG specialist. Her heart is ok as far as we know -- they checked it out pretty completely BEFORE starting her on all of the meds -- she is ALSO taking Maxalt (has tried all sorts of others -- arrrggghhh). She IS down from 28 days of headaches a month to 7 or 8 days -- a HUGE improvement, but we'd all like even more.

She hasn't seen a rheumatologist -- from what I understand, it would be easier to get a private audience with the President or the Pope. Rheumys are in VERY short supply in our neck of the woods OR very, very overbooked.

She doesn't LIKE to be outside, so not really sure about the sun. She DOES have a recurrent rash on her legs -- but it is itchy, red, and scaley -- usually in circular areas. I do remember her breaking out all over her face a couple of times (not butterfly pattern) -- and we didn't know why -- she has fantastic skin -- small pores.

At one point, she had a droopy eye and was slurring her speech -- I was convinced that she had MG. Of course, she had a very sophisticated MRI at the beginning of her migraine "journey", so MS was more or less ruled out. They ran the AChR panel -- negative. The neuro was convinced that these were simply migraine aura symptoms. I read that Lupus was the great "mimic" -- I wonder........

Annie, you have REALLY helped a LOT!! I'm going to print your message -- and print info from the links. My sister has almost stopped listening to ME "harp". I'm the "sick" one -- yet, SHE is the one we ALL worry about.