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Elder
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Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
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Elder
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
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I got a call from the Senior Director of Patient Services of Biogen Idec this afternoon and I have his direct phone number for future reference. He assured me that the risk is still within the 1:1000 even for patients with a greater number of infusions. The current number of confirmed PML cases is 23.
I explained to him why I disagree with the change in their reporting policy and why I don't think it's acceptable for them to put this duty on the backs of the physicians.
I thanked him for calling but until they change this policy or make it easier for patients to get accurate data and reports, I'll keep working for this to change.
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Wiz
Turn Left at the next election. .
RRMS DX 01/28/03 Started Copaxone again on 12/09/09
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