Thread: Tysabri Information and Check In part 2
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Old 10-28-2009, 10:17 AM
KarenR*'s Avatar
KarenR* KarenR* is offline
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Join Date: Jan 2008
Location: Beautiful Western North Carolina
Posts: 35
15 yr Member
KarenR* KarenR* is offline
Junior Member
KarenR*'s Avatar
 
Join Date: Jan 2008
Location: Beautiful Western North Carolina
Posts: 35
15 yr Member
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Thanks to everyone who is advocating on behalf of all Tysabri patients.

The earlier link posted by komokazi http://www.forbes.com/2009/10/27/ms-...rtner=yahootix gives enlightening information not only about the JC Virus testing being developed, but the number of PML cases and the new "odds" (1:400).

I'm getting more concerned with each passing day that we do not have 100% of the information we need to make good decisions.

I am postponing my 37th infusion in 2 weeks until after my scheduled MRI on 11/12 and a thorough and frank discussion with my neuro.

Be well,
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Karen
dx 6/05 ~ Rebif 7/05 ~ Tysabri 2/07 ~ Copaxone 12/09 ~Tysabri 7/10 ~ IVIG 5/11 ~ Gilenya 1/14
KarenR* is offline  
"Thanks for this!" says:
ewizabeth (10-28-2009), Grammie 2 3 (10-28-2009), Natalie8 (10-28-2009), Riverwild (10-28-2009), SallyC (10-28-2009)