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Old 10-28-2009, 04:31 PM
raina raina is offline
Junior Member
 
Join Date: Oct 2009
Posts: 13
10 yr Member
raina raina is offline
Junior Member
 
Join Date: Oct 2009
Posts: 13
10 yr Member
Default PN and muscle atrophy

Hello, I just found this site today. I have had PN for approx. 12 yrs, lupus for 25 yrs. dx and treated last 5 yrs, under good control and type 2 diabetes for 2 yrs. very good control. I have had severe pain most of these years and it's subsiding some now but I have no complete numbness. The last few months I've noticed all muscles, both sides below the waist getting smaller and possibly starting in shoulder and yesterday had it confirmed that I have permanent muscle atrophy from PN...no muscle disease. My rheumatologist says he doesn't think it's from my lupus because it's under good control. Also have had EMGs last 2 yrs that show damage. Do any of you have similar atrophy.....what does it mean for the future? Are you in a wheelchair? I see a neurologist who specializes in PN in Dec. I can walk, get up from the floor, walk up stairs but it's noticable to me that I'm much weaker as the years go buy. I think it's progressive can this be stopped??? Thanks for any help, Raina
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