Edife,

I absolutely agree with Wiz, we do not want the choice to take Tysabri removed again. we just want the drug company to give us information so we can make informed decisions.

If you start Tysabri today, you will be in a group of 45,000+- patients who are taking Tysabri with a risk of 1:1000 of PML.

Wiz and I and some of the others here belong to a much smaller subset within that 45K number. We are in a group of 7500+- who have been on the drug for more than 30 months within that group of 45K. The longer a person is on Tysabri, the higher they say your risk is now, according to the information being alluded to everywhere except where it should be stated truthfully, immediately and accurately, to the patients who may be affected by the information that leads to understanding that rate of risk

That is what we are fighting for, information, so when you get to where we are right now, you will HAVE the information you need to assess your risk and comfort level and not have to go through what we are going through right now.

I know a few people who were in the original trials and have had 75+ infusions and they are not happy either. Imagine how they feel knowing their subset, which is less than 2500, can't make an informed risk assessment because the drug company won't tell them what they need to know either.

We are not trying to limit choice. We are trying to make sure that we make good choices for ourselves, and we cannot do that without information.