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Old 10-29-2009, 12:06 PM
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Aarcyn Aarcyn is offline
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Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
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Your mom and I have a few sx's in common. I also never go into any kind of remission. When I fall, I try to figure out what I can do next time to prevent it. But without my rollator (a walker with wheels and a built-in brake), I can fall sideways because my legs are getting stiffer.

I have tried just about every drug out there - LDN, Aminopyridine, chiropractor, acupuncture, accupressure - but none of them seem to affect my slow deterioration. But my descent is slow.

I use a rollator and when it comes to making it to the bathroom, I have learned to be calm and just hope that my pad holds it until I can get to the loo and change it.

I take Baclofen for stiffness. I wish DH would stretch my legs but I am too shy to really ask him to do it every day/night. He does not understand what to do and that is also a problem with asking him.

I would love a prescription for a weekly massage. It sounds like a luxury but for me, it would be a prescription. I have a good place to go, the therapist is a body builder, he knows muscle anatomy. You may look into that considering you are in the UK and your medical is different. My insurance does not cover that.
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