Quote:
Originally Posted by Pat 110
That all sounds very promising. It would be wonderful if the pred would heal the lung damage at the same time helping the MG. If I recall correctly you had some reservations like me about taking pred. Maybe it would only be a short course of treatment. When do you think you'll be seeing your GP and do you think he'll be the doctor you'll be working with concerning your treatment? I bet the new neuro you find will be a good one since he/she comes reommended by Dr. Nicolle. Good luck with everything and keep us posted. Take care. 
Hugs,
Pat |
My GP is a great guy who has done a good job of looking after me so far. I'll probably not bother tracking down a new neuro unless mine doesn't come back. This trip has given me the info I need so that I'll be able to work with my GP to manage my treatment on my own.
I did have reservations about starting steroids. They absolutely have their own complications and that was what Dr. Nicolle stressed. Mestinon is a great drug for treating the symptoms and it comes with the least side-effects of any MG drug. To get "better" at this stage, I have to go to something that will suppress my immune system for a while. Pred is a 6 month - year course before it would do what it needs to... Immuran is a year plus before it has finished doing what it has to do. A combination of the two is also an option. Celcept is unlikely due to co$t.