Quote:
Originally Posted by mrsD
Did you have a Vitamin D test? I don't recall if you stated you did.
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I didn't have a Vit D test Is that helpful? what will that indicate? In the 4 days before this all started, I had been taking 3mls of cod liver oil in some juice. As I said, only about 4 days worth, so probably inconsequential?
Quote:
Originally Posted by mrsD
A high folate reading either means it is building up in your system (not being used) or you are taking it orally. Since you are on Pentasa which depletes this vitamin, and you tested high for it....are you taking it supplementally?
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I've stopped taking all supplements since this started (I was taking a multi/adrenal support cap). and I stopped my Pentasa because of my slightly impaired kidney function. The only thing I have done is I took Acyclovir for a couple of days to see if I had any change in symptoms. This has not changed anything and my burning sensations persist. They come and go in different parts of my body, in a pretty symmetrical fashion. It seems a shingles outbreak with or without a rash is pretty focal where as my experience is that this is moving around. Face, back of legs, forearms.I've had a look around, and none of the symptoms of 'Shingles without a rash' appear to be like mine.
I starting to think I am stuck with this. As the *only* thing I can find that fits what I am going through specifically is the Ganglionopathy scenario. It certainly seems to be the worst possible option, but nothing else is coming close to fitting the symptoms. I'm not holding out much hope for my Neuro visit. I guess he'll just be saying the same thing, that it's hard to diagnose, lets just start some pain management etc. What a terrible affliction this is
