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Old 10-30-2009, 06:15 AM
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default In my particular case--

--no diagnosis was ever forthcoming--I am still, after all these years, "idiopathic".

And yes, it's very hard to distinguish between an acute onset body wide small-fiber neuropathy and a similar onset where the attack is on the dorsal root ganglia. Dr. Moghekar, who is the Johns Hopkins researcher who wrote aboutthis and who I've corresponded with, says since the technology does not yet exist to adequately image the dorsal root ganglia, a determinatin on that score awaits my autopsy (which, I gather, is typical neurologist humor).

Moreover, it would be very hard to distinguish this from a sudden attack of Central Pain--the type that occurs when there is sudden damage to the spinothalamic sensory tracts that go from the upper spine to the brain. People who get this report very similar symptoms, and there are many causes, including stroke/transient ischmeic event, multiple sclerosis, meningitis, and, interestingly, subacute cord degneration from B12 deficiency (which does not only affect the peripheral nerve, but can impact every cell i the body).

Take a look at

www.centralpain.org
www.centralpain.com

I do think, given the high folate/low B12, that the testing Mrs. D talks about is worth pursuing.
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"Thanks for this!" says:
Kiwiboy (10-30-2009)