I'm glad you're going for a 2nd opinion, and it's only 3 wks away. Get copies of all your tests, keep a journal of what's going on (I used to say sx, but keep track of everything - meds, everything!).

BUT - and this is important - go on and live your life, best you can. Having other things on your mind will help to keep you from thinking too much.

I got too wound up, honestly. And it's hard not to. It's so frustrating, so scary.

We used to do a weekly limbo check in and I would see ALL the time, not just me, but probly 80-90% of us, would have an onslaught of sx the first year or two. It calms down, trust me. I think the STRESS of it all really ramps it up. I still flare, it still irks me, but I'm not as scared.

I don't think I bring on anywhere near as much as I used to.

I think that's cool you can talk to your aunt. Get her talking about all the things she has done, and all she still does. And think about all the things YOU still want to do.

While in limbo, I built a shed, put up a fence and remodeled a bathroom with dh. I started writing again and got published. It ain't over till the fat lady sings.


Congrats on your job!