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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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While I congratulate Biogen for finally saying something, their statement released on the NMSS home page is a disappointment.
They have got to put something in place that gives patients ALL the information they need, not just a general statement full of information that anyone with a computer who searched on this matter since Monday could have found on any investor site or financial news site and also by just reading this thread!!
Deb,
I feel the same way about Tysabri. It's been a miracle for me, and I don't ever forget where I was before and how I got where I am now BUT I am not willing to play Russian Roulette with my life when it comes to information Biogen has but does not share with patients. We need full disclosure of all the details, not just a spoonful of general information.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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