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Old 10-30-2009, 05:04 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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Raina,

I have autoimmune autonomic neuropathy, (ganglionopathy) as well as sensory neuropathy, so my case is hard to compare. I am not doing all that well right now, but, I am going thru some pain med changes, like completely off, so we can get an idea if this IVIG is working. It is going to be a month or so before I get to baseline....again....(been there, done that a few times before) I was doing pretty well on the IVIG and then my body seemed to reject pain meds and all systems started to crash. Can't live on them, can't live without them...ugh

Neuro.wustl, is a site that quickly gives you info on diseases, it is http://neuro.wustl.edu I hope that is the correct site, I got a new computer and it seems not to copy addresses for me to paste. Hmm

Answers take a long time.
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