Hi Ali,
As you know my Lindsay is the one with the fight, and right now we are also dealing with teachers that we have explained the affects of Lindsay's RSD. She is in a major flare, we are meeting with Dr. Kirkpatrick on Tuesday to discuss Ketamine boosters. So I am in a fight with her school as well. I know how some teachers are and it breaks my heart that there are some out there that are in this business to not understand kids and their illness. She has some really supportive teachers and some not so supportive. So I have to be the battler for my child. I have every document in place and they are backed by I.D.E.A. But, unfortunately, everytime she has a flare I have to fight again. My plan for when Lindsay is better and on a good road and possibly in remission after the booster, is to start an advocacy group for children with chronic illness. As I have told you I am a teacher so I know how the system works.
It is funny, I am going to throw this out there, that I always say to them, if my child were suffering from Cancer, you would have a more compassionate understanding or attitude, but because you can't understand my childs illness, you decide to discriminate against her. It is just ignorance as far as I am concerned.
We do have many laws in the U.S. that protect children from the affects of illness and time loss in school. But, as you say, teachers sometimes (not all teachers,) don't care to take the time to understand...They just don't want to care.
Keep going Ali, because like I said before, YOU are the one that can change the small minds of some people for many generations to come.
I AM SOOOOO PROUD OF YOU.
Much love to you, and how is College going????
Sandy
Quote:
Originally Posted by ali12
Thank you both so much for the support ... I really appreciate it!
Olecyn - I hope that there is something that can be done to get American school's to listen to kids with illnesses/disabilities. I know that it isn't just a problem in the UK ... it's a problem worldwide unfortunately. Hopefully some day soon, something will get done before it's too late! I hope you're doing well and thanks for the support!
Sandy - Thank you for the support! ALL of the kids at the meeting and their parents, had told the School's and each indiviual teacher about their indiviual illness and how it affects them but unfortunately, despite all of this, some teachers still didn't want to believe and/or help them! I know for me and many of the other kids that were at that meeting, I have a statement put in place saying that I have an illness and need additional support and ALL of my teachers are made aware of that but they still don't really take much notice of it! We're hoping that the meeting will have helped the MPs realise that more needs to be done and put additional laws into place however from what we were told, some of the things that are happening shouldn't be as the laws are already put in place to protece against them so it seems to be more of an uncaring manner from the teachers.
Thank you both again! |