Thread: Prednisone
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Old 11-02-2009, 09:59 AM
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
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Quote:
Originally Posted by PMCPMC View Post
I have just recently been diagnosed after presenting at A and E with heavy pressure on my chest like I was going to have a heart attack
Ecg was fine but o2 levels were low
Several weeks previous a girl who sits opposite me in the civil service in a call centre commented "do you you know by the end of the day your right eye is nearly closed each day.I thought you were having a stroke."
I checked it on the internet as ptosis of the eye a sign of of possible myasthenia gravis.
I had to go any way as an annual check to my opticions who immediately noticed the ptosis as I entered the room.
She gave me a letter for the gp
The Gp would have on the following tuesday following my entry to hospital on the friday night diagnosed mg from the blood tests.
The neuro saw me over the weekend and started me low dose prednisolone building to mgs a day by the time I left hospital after two weeks.
I have bone and stomach protection medicine to take with it .
With this I also was was started on mestinon 60mg every 8 hrs .
Before I left hospital I was doing some walking in the main hospital corridor and found the same heavness again.
Just last night I was late with the mestinon and the chest preesure returned and my throat felt as if it was closing until the mestinon kicked in after twenty minutes and cleared it completely after an hour .
I guess my diaphram is my weak muscle in this case
Ok, I'm the first to respond -- there are many others in here who know MUCH more than I do -- but, here goes. Sounds like you started out with Occular, but have progressed to some Bulbar -- maybe even Generalized. The choking, chest pressure (breathing) is Bulbar -- THE most dangerous kind -- the kind that puts us into CRISIS -- into the hospital under a ventilator. You must learn to "listen to your body" -- be VERY, VERY careful. SOME of us (and you may be one) can literally be FINE one minute, and near death the next. NOT trying to scare you -- just want to make sure that you don't leave this Earth before you are supposed to!

Mestinon should probably be taken every FOUR hours -- not every eight (check the dosage schedule on an internet site). It doesn't LAST 8 hours.

I'm fairly new to this group -- but, it is a GREAT bunch -- really NICE people -- SMART as WHIPS!!! WELCOME to the GROUP!!
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