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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi, Welcome ,and so sorry about your diagnosis. Jana is right on point, listen to your body. Check the dosage on the Mestinon. Also, when you feel like your throat closing up, you really should go to the hospital asap. Better safe than sorry. At the very least, call your neuro.
What dose of Prednisone do they have you on, and have they started you on any other meds? Many MG'ers are on a cocktail of meds, and that cocktail can take a couple years to figure out which combination will work best for your body.
My breathing tanks quick, and I can tell you that throat closing up feeling is a red flag to call your neuro, or go to ER.
I hate to sound like your Mom, but please during this period of learning all this, and figuring out your symptoms and all, rest rest rest. Don't over do anything, and watch what chemicals you may inhale, like cleaning items, comet is awful for me.
Hot showers are also troublesome. Anything that would normally make a healthy person pant, or breathe heavily, can be very dangerous for us.
Again, like Jana said, I'm not trying to scare you, just trying to educate, and give you all the warning signs.
On a Personal note, folding and putting away clothes causes me to breath terribly, so I get help with that.
Do you live alone, or are you married?
I'm sure many others will be along to help you.
Oh, one last thing, You can take too much Mestinon too. Read up on all the signs of too much Mestinon, it can be very much like your symptoms getting worse. It's tricky, but you'll figure each thing out. And we'll be here helping you through each step.
Much Love and prayers
Lizzie
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