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Member
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Join Date: Aug 2009
Location: mo
Posts: 267
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Member
Join Date: Aug 2009
Location: mo
Posts: 267
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Mestinon making weakness worse???
Joan Marie and Jana,
I think I will try only taking 30 mg of Mestinon this afternoon and see if that makes a difference. If it doesn't make a difference I will call my Dr. in the morning. The Pred is a double edged sword. It makes me feel so much better but I am terrified of the long term side effects. I don't think lowering my dose of that is an option right now. It was precribed by my Pulmo to see if it will help with Interstitial Lung Disease and she wants me on it 3-4 months. Jana I think you may be right that I may be overdosing on the Mestinon since I am now on the Pred too. This disease is so confusing and the Mestinon is so tricky because too little or too much makes MG worse.
Thanks,
Kendra
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