Quote:
Originally Posted by Cooze
Wow sorry to hear this. Well Ive had my CT Myelogram and it showed that a blood patch I had done for my CSF leaks in March has sealed the neck of the cyst. I am also told I have another cyst which is connected to the CSF.
They are going to aspirate the large, closed cyst.
What kind of pain are you experiencing? Did you have pain prior to the aspiration? Do they know what is causing the pain??
I havent got a date for the aspiration yet but am hoping it will be soon.
Looking forward to your reply.
Cheers
Rachel
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I had pain before surgery, but ever since the surgery my pain is much worse. I have severe pain in lower back, into buttocks and down both legs. I can't walk even the length of a parking lot. Johns Hopkins has been very unresponsive. They let weeks go by before getting back to you. It's been over 3 months.