Hi Sandra and welcome to NT!
Nerve pain really is unbelievably awful. Mine was caused from injuries sustained in a serious car accident. Despite an ocean of pain meds, I can still find myself screaming in the middle of the grocery store. I haven't slept longer than a couple of hours at a time in over two years.
Have you tried alternative medicine? I find accupuncture can calm things down for brief stretches. Even ten minutes when I'm not in constant spasm is like heaven.
I don't have experience with spinal surgery, but many at NT do. Here are a couple of links that might help you navigate the forum:
Chronic pain:
http://neurotalk.psychcentral.com/forum10.html
back:
http://neurotalk.psychcentral.com/forum22.html
Cheers and hang in there