I'm new to this site, but I have been dx with mg for 3 years. My symptoms were so bad by the time I got a diagnosis that I was almost wheelchair bound. Finally after the 3rd neuro I was diagnosed.

I take high doses of mestinon 180mg 3 times a day 2 60mg short acting twice a day, I can't take the prednisone because it makes me psychotic.

Even with all of the mesitnon my symptoms are getting worse by the day,I used to have weakness in just my legs but now I feel through out whole body my mouth gets tired if I chew something for to long, I'm starting to have trouble breathing, my balance is way off.

So I need to go back to the neuro for a check up and see I need a med changed.

Has anybody else experienced the same after being on mestinon for a while?

Thanks Renee