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Member
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Join Date: May 2009
Location: Toronto, Canada
Posts: 547
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Member
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
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Hi Tyson,
I have bulbar MG too...The plasmapheresis treatments help me a lot, but my symptoms come back fairly quickly...Sometimes only two weeks after the treatment...
It sounds like you have a lot of limb-weakness...What bulbar muscles are affected by your MG? Mine are my tongue, palate, neck and chest muscles mainly...Oh, and facial muscles...
I also had a thymectomy this July...My MG got a bit worse after, but I have read that it's fairly common for that to happen with people who've had thymoma and have a lot of bulbar weakness...
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