Dear Oliver's mom,


I'm so sorry your son is experiencing this difficult and complicated condition. My heart goes out to you all.

It is not in his head but it is most likely that the brain plasticity is altered by constant pain signals being sent to his brain and it is that that changes the chemical reactions and signals that are then sent to various other parts parts of his body.

Has your son had any nerve blocks, epidurals, continuous peridural blocks to help his RSD?

I can highly recommend a Klinc in Schleswig Germany, they take many patients from Denmark and from what I was told it is often covered under your medicare system. They understand how to treat RSD patients there and I can give you the contact names and numbers of the doctors. I went there on my own dime just over a year ago from Canada and they helped me get through a surgery that was necessary on my RSD foot. They gave me a week long continuous peridural anesthetic that helped prevent further spread of the RSD following my surgery.

It is considered a gold standard treatment for RSD patients early in the disease process. Perhaps they can help you. Please feel free to send me a private message, I don't speak Danish or very much German but the staff and doctors in the Schleswig hospital spoke more Danish than they do English. I learned "alles klar" there from my favorite nurse.

MsL