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Old 11-05-2009, 07:51 AM
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
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15 yr Member
darlindeb25 darlindeb25 is offline
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darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
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There is always hope. My neuropathy has improved, I doubt it will ever be gone, and I will always have to take B12, yet it is better.

My feet have never been totally numb like yours. At one time, they were very painful. At that time, I didn't realize I had neuropathy, and with no insurance, I didn't seek a doctor's help.

My neutropathy started in my hands, or appeared to start there with carpal tunnel. For years previous to that, I had hip pain, upper arm pain...like arthritis, I thought. My issues began because of a gluten intolerance, which was undiagnosed for years. My issues all started when I was pregnant with my 2nd child, who will be 33 next month, and my gluten problem was finally figured out 9 yrs ago...which is far longer than the normal 11 yrs diagnosis time. The gluten was doing damage to my nerves for a very long time.

Five yrs ago, I started on B12, fist 1000mcg, then 3000mcg, and for over 1 1/2 yrs, I have been taking 5000mcg. Very rare for my feet to have pain...knock on wood, the buzzing has stopped, I haven't had any electric shocks for some time now, and I can sew again. I do still have balance issues, and when I take long walks, I sometimes have drop foot...yet as a rule, things are much better for me now.

Along with the B12, I have been exercising daily since January. I do get flare ups in my shoulders from some exercises, but I do not give in. In the long run, I think the exercise will be as valuable to me as the B12.

Oh, and yes, I have sensory neuropathy with some axonal involvement, along with gluten ataxia.

There is always hope.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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