Thread: hhelp my son
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Old 11-05-2009, 03:51 PM
jccgf jccgf is offline
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jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
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Hi~

Based on the past positive result of gluten and casein antibody tests, I would continue with the gf/cf diet.

Antibodies to gluten and casein will begin to decrease once gluten and casein are removed from the diet. It can take anywhere from a couple of weeks to a year for those antibodies to reach completely negative levels, but testing him now will not give you the same results as when you tested him while eating these things.

I wouldn't go backwards by putting your son back on wheat and cow's milk, just to run new tests. You could rerun the tests to be sure you are completely removing these items from his diet... the antibodies should be lower or negative.

Quote:

.BUT the doctor told me that this kind of test is not known here in usa and she did an allgery test that shows that mohamed is normal .
I'm guessing you may have seen an allergist or a doctor who was only thinking in terms of IgE allergy testing. Most of our doctors here either don't know about or don't really believe in gluten and casein sensitivities unless they are IgE allergies. But, there is more and more research being done on IgA and IgG reactions to foods.

Really ANY doctor should be able to order gliadin and beta-casein IgG and IgA antibody tests for you. The trouble is finding a doctor who understands why these are meaningful.

There are some doctors here in the US who will test for gluten and casein related peptides (as well as gliadin and beta-casein antibodies), but these are often a different type of doctor... what we call "alternative" or "integrative" medicine doctors. If you searched out a DAN! doctor, one would be able to make sense of this for you... and understand completely what you are talking about. DAN! stands for defeat autism now, but they treat children with or without autism spectrum disorders. They are probably the smartest doctors when it comes to understanding gluten and casein problems. The "peptide" problem is different than the "antibody" problem... and people can have one or the other, or both. A gluten free/ casein free diet is used to treat either problem.
DAN! doctors
http://www.autismwebsite.com/practitioners/us_lc.htm
Integrative Medicine Doctors
http://jccglutenfree.googlepages.com...edicinedoctors


Here are some labs who do urinary peptide testing:
http://www.greatplainslaboratory.com...ng/peptide.asp
http://www.genovadiagnostics.com/ind...139&print=true

But... again... if your son has been on a gluten free /casein free diet for a period of months... the tests will likely be "negative" or normal.

I have seen one study that suggests that children with CP might be at greater risk for gluten sensitivity. As long as your son has tested positive in the past, best thing, in my opinion, is to just stick with the diet.
http://www.ncbi.nlm.nih.gov/pubmed/1...t=AbstractPlus


Quote:
NOW I DO NOT KNOW WHAT TO DO ?IS THAT ENOUGH AND I CAN LET MY SON EAT EVERYTHING OR NOT?
I think you should keep your son on a gf/cf diet. I've heard of MRT, but don't know enough about it to comment. Your son's peptide test was probably within normal limits because he isn't eating gluten or casein, or maybe he doesn't have the peptide part of the problem. If you had positive gluten and casein antibody tests in the past, that is all you really need to know. A gluten free/ casein free diet is for him.

Have you noticed any improvements in his health or behaviour since removing the foods? How long has he been gluten and casein free?

I hope this makes some sense to you, and I hope you can find a doctor who can help you.

Cara
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Last edited by jccgf; 11-05-2009 at 04:11 PM.
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