Aww, Hoshi, sorry to find you here and feeling so bad for so long. I went through MS testing when I was 16, many many years ago. I didn't know what they were looking for and was scared. I didn't know anything about it at the time, and there was no internet. I think you're right to be concerned.

It does sound like you have a lot of MS-type sx. I would definitely follow up with another MRI if you can get the doc to order one. I only have a few brain lesions, but many symptoms, and my neuro can't always make sense of why I hurt when and where I do since I don't have any evidence of problems there. For example, I have no spinal lesions, but have a lot of trouble with my legs and now with the MS Hug, which I understand would indicate spinal involvement. What I'm saying is, lack of lesions doesn't completely rule out MS. And they don't so much determine you have MS, as rule out that you have anything else like Lupus and Lime Disease (among others), which have similar characteristics (without lesions, I think).

Learn what you can, patiently pursue medical help and do what you can to alleviate symptoms. I hope you get a definite diagnosis soon. Limbo sucks! I was only there for a few months and that was tough! Hang in there!