Well I don't even know why I am here. I guess this is the only place to be tonight. I've had approx 17 or 18 tysabri infusions since I was Dxed and now 2 relapses in less then 2 yrs. I've only had approx 6-7 mos since I was Dxed when I was not in a relapse. I'm in a major relapse now and I need your help. I'm scared. Mri shows active on left & right parietal lobe. That was inactive b4. I've had 5 home health iv infusions of steroids and 0 improvement. This relapse in past 2 mos was coming for about 3-4 day and then it would let up and come back. B4 the roids it was full up for 7 plus days now back again. It started back up while I was on 3rd day of roids. I have no idea of what to do.

I have a Dr with knowledge but to be honest, I am not one who is liked much. I've had so many problems out of his so called nurse and her staff; I have grounds to go after their med lic. I cannot even get my medical records. Yes, they will not send in violation of law. They finally sent to one place requested but not to me as requested. Sure, I'll sue them and take the lic - all on tape, but that does me no good. I want to walk... I want treatment. I paid them to care for me not toss me off, yell at me and treat me like s**t. Yes, I have it on tape, all but the 1st time they yelled.

I'm lost. My arms to hands, legs to feet on both are very weak. If this continues I see me in a chair w/o movement from neck down and I see it as possibly now. I can not live that way. Forget attoneys; I have them, but no time due to relapse. What are my treatment options? Any help please. My lesions are all in the wrong place; they control all of me. The hospital will not take me unless a Dr puts me in for roids and there is none. I think the stress of this Major and well know facility has put me into this relapse. But, it does not matter - now only matters. I fear I'm going to lose my life here guys; please any help.

Thank You

I know I have rambled; that is just the way I am now. I am sorry.