The childrens pain clinic made a spot for her for next Thursday. I also have an appt made with a child Rheumatologist, that my Ped recommended, though I am not sure if that is where I need to go. WAiting to get answers about that.

I think I am still in denial myself. I want to see my child walk, skate, and rock climb again. I keep reading that she may have this the rest of her life. This is so sad. I sometimes wonder if the diagnosis is wrong myself, since we dont have the sweating, burning sensations, etc that may go with this, or maybe we are early enough in the process.

Thanks for all the support.