I have been on pred for almost 1 yr. now. Some side affects diminished after a few months. (nadea, upset stomach, lack of sleep and most sweats.) But I still have a swollen face and feet. My arms are always marked from bumping them and cut very easy. I have lost 10 pounds but my gut is 3 inches larger. Not sure if this is from pred or just lack of exersize because i've become so week. I am taking 120 mg every other day and I believe my neuro is going to try to reduce it when I see him in 3 days.. He want's me off of it.

I get IGIV 2 days a month and I take 300 mg of mestinon and 2000 mg of Cellcept a day.

I am feeling better most days and seem to be getting a little strength back.