Kendra,
This is interesting. I do feel nervous like you described. I thought it was my PSTD (post traumatic stress disorder) acting up again even though I had it under control. I am pretty sure the shaking (not always visible) and dizziness is from the Mestinon since I am not taking any other medicines and the timing makes sense (it starts about 20 minutes after taking 60 mg of Mestinon and stops after 1 hr or so).
This morning I took 1/2 pill with no shaky/dizzy/nervousness and 4 hours after I took another 1/2 and I did feel a little shaky/dizzy and nervous too, but not as much as usual with the whole pill. Maybe I need to go a little longer between half doses. Now I am relaxing today since I don't feel so great and that may make me need a little less Mestinon. This is my first day with the 1/2 pill thing so I will continue it and let you know how I am doing sometime in about 1 week. It is hard to judge the effects of medicine with 1 day only. I am writing down the results of my 1/2 pill experiment until I find a dosage and timing that works best.
I don't like this shaky/dizzy feeling or the nervousness that I see now may be the Mestinon as well. But I will live with it if that is what it takes since it is better than being bedridden.
I will pay attention to the timing of the nervousness since I am not sure when it happens only that I have been feeling nervous since I started Mestinon. I though it was just the added stresses that go along with MG making me get PTSD again.
Water helps I am sure of that...going to get more water right now. The shakiness and dizziness I think can be caused by dehydration and not enough water to the kidneys.
Something as simple as taking a pill can become so complicated, it actually makes me laugh.
Thank you
Quote:
Originally Posted by dog lover
Desertflower,
I have exactly the same symptoms in the morning!!! The shaking and dizziness is scary!!! Do you also feel nervous and anxious like you are in overdrive? I really thought these symptoms were related to the antibiotic I was on but i have been off of it for 3 days and still feel this way every morning. I had a CBC done yesterday and know if everything there comes back fine it HAS to be the Mestinon. I think I am like you and do better with less and don't seem to need it at night. I take my first dose late morning but by 2:00 I can definitely tell I need my second dose. I start getting very weak feeling.
I am going to work on drinking more water. I think that may be part of my problem. Maybe that will help with some of the shakiness and dizziness. Thanks for the tip!!! 
Kendra |