Desertflower,
Oh my gosh I HOPE it doesn't take me a year to bounce back from this antibiotic!!! I am really starting to lean towards it being too much Mestinon. I think that with the Prednisone it is just too much in the mornings with the Mestinon too. Hopefully the Pred is only temporary and I can go back to Mestinon only in 2 or 3 months.
As for your Dr. being willing to help if you decide to go ahead with the disability that is great!!! I think my MG is alot like yours. There are ALOT of people who have it ALOT worse but ours is still bad enough that we have days when we don't feel like doing anything. I have been tossing the idea of disability around myself. My family is insistent that I need to quit working and try and get it. Part of me agrees with that but the other part of me doesn't want to quit doing what I love. Of course finances are an issue with me too. I am so swamped in Dr. and RX bills right now I don't think I could possibly quit working before the first of the year. I just keep praying they can find a med or combo of meds that will give me good enough results that I can continue to work and still have enough energy left over to enjoy my off time. I feel for you and will keep you in my thoughts and prayers. Thanks for the info on the Mestinon.
Kendra
Quote:
Originally Posted by DesertFlower
Kendra,
There may be other doctors here that know MG but my understanding is that my doctor is very good with MG. He diagnosed me quickly which I appreciate more than I can express  and has been helpful overall. I hesitate to find another doctor but if I decide to apply for disability I will consider it. My doctor only needs to report the truth about me if it is needed and I think he will do that if I ask.
I am glad you are off the antibiotic, that should help. For me antibiotics make me feel sickly for about 1 year after - I have to eat lots of yogurt and probiotics to get my body functioning correctly again so I don't get yeast infections. Luckily I haven't needed antibiotics for at about 6 years.
Twitching is a side effect from Mestinon, but for me I have found that it means I have to take less Mestinon for a few days.
I hope you are feeling well.
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