Originally Posted by SandyS

Hi,

First, I am sorry to hear that your daughter is going through this at such a young age.

I have a child with RSD as well, I took her to the Cleveland Clinic Pain Rehabilitation for Children. I highly recommend the three week program. She is young and in the first stage, she can go into remission and maybe never see this ugly disease again.

The program is two weeks in hospital and one week outpatient. It is all children they understand what each other is going through, I took my daughter twice. This is a great beginning.

Opiads are not good for pediatrics, they tend to make the pain worse. Look into a pain program, don't get caught up in going from doctor to doctor to doctor, PT/OT with therapists that do not know much about RSD, they can hurt her more. here is the contact information for the pain program, the contact name is Kristen Buchanan 216-448-6158. Call on Monday, this is the best chance for your daughter. It is not an easy program, but you should begin here. Trust me I know...

My prayers are with you.

Sandy