Hello Zaria and Welcome to NeuroTalk!
Sorry to hear about everything that you are currently going through!

I don't have any first hand knowledge of what you are dealing with so can't help you there unfortunately but if you ever want someone to talk to / some help with the forum etc, please don't hesitate to ask - i'd be more than happy to help you!
Good Luck with your appt with the Neurosurgeon - I hope you get some answers and help!
Take care!
Alison